The day I broke 

messiermummessylife

No one is coming to our rescue.

Our social worker is a chocolate teapot who’s broken record repertoire of ‘no funding’and ‘nothing they can do’ is wearing embarrassingly thin.
CAMHS are merely a suicide hotline for young people, funding only the very extreme cases that can no longer continue being ignored and are pushed to make a permanent solution to what could be a temporary problem with the right support.

Help. Such an empty word. Full of pity. Such a shame.

Being a parent of a child with special needs means to continually rip your heart open and remain functional. To continue to breathe with minimal oxygen. To struggle beyond the realms of coping. To walk through firey battles and live in a perpetual state of weariness.

No one is coming to rescue us.

You scream from a burning building, frightened for your sanity and for those little people you’ve…

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Charging at the Romans

TheTiredOptimist

Its AD 61 and you are standing in a field somewhere in the Midlands and you are angry, raging at the injustice of it. Your world has been conquered, Boudicca’s daughters have been raped and along with well over a 100,000 of your fellow Britons you are hell bent on having your revenge and on punishing the Romans for what they have done. Driven by your indignation and convinced that you have right and numbers on your side, you and your fellow tribe members charge at the Romans – a seething mass of rage surging across a field. Unfortunately, it was a field of the Romans choosing. It was open, yet narrow and despite being massively outnumbered, their organisation and superior tactics meant that they were able to slaughter tens of thousands of Britons for the loss of only a few hundred Romans.

There is something about this scenario that…

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Under Lock & Key

picklehead wigglebum mum

I am not a fan of the system that’s responsible for my son’s care and education. It’s complex. It’s running on empty. It’s on its knees. There’s no money. Provision is scarce. There’s not enough practitioners, too many children. Stretched, underfunded, at breaking point.

There are so many good people who work for the NHS, for the local authority, for social care, and even for the government. I respect anybody who goes into a role wanting to help others and build towards a better future, but it’s not working the way it should be. The system is broken.

Like all other parents of children with special needs, I have had to learn to fight for my son. I’ve learned to speak up when something doesn’t feel right. To question everything I am told. To challenge authority. To not always take no for an answer. I have researched, gone on courses…

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Amy’s Story- Nearly a Million spent on education, and torture/ death in the Priory.

finolamoss

Everyone said, ‘In there at least she’s going to get help’ but she didn’t 99641453_amy-el-keria-news-large_transqvzuuqpflyliwib6ntmjwfsvwez_ven7c6bhu2jjnt8get anything at all.”

Amy’s mother on her removal to the Priory Hospital Ticehurst House, in August 2012.

3 months later 14 year old Amy was dead.

Amy was a troubled, confused teenager, but why ?

Her mother described her as having ‘ a warm heart and a great sense of humour.

’ She never liked to see people treated unfairly and would be the first to stand and say ‘that’s not right’’

But the tragic irony was, that Amy herself was treated beyond unfairly, and no one, systemically, could stand up for her.

Amy’s forthrightness and conviction, contributed to her CAMH’s diganoses of oppositional defiant disorder (ODD), defined as a pattern of angry/irritable mood, argumentative/defiant behaviour.

And Conduct disorder(CO) a range of antisocial types of behaviour displayed in childhood or adolescence.

It appears…

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