All posts by danutag57

The Advocacy Games

Totally in agreement by experience.

Love, Belief and Balls

I’ve been invited to speak at an advocacy conference next week and have been asked to talk about the various aspects of Steven’s life where I have had to be his advocate. In preparing my talk, it’s brought home again that since transition to adult services, the areas where I’ve had to advocate are the very biggest stuff of life. The foundation stones to a normal human life.

Throughout 2010 to 2011, I had to advocate for Steven’s liberty. A fight to release him from unlawful detention, with the spectre of a life of institutionalism in the future should his liberty not be secured.

Then from 2012 to 2016, the fight was to get Steven a home. From being made homeless in 2012 (again unlawfully), until finding a home last year, the fight to be heard and for Steven’s needs to be respected was relentless.

And finally, from 2013 and…

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‘I want to ask you a little about your blog…’

mydaftlife

This blog has again loomed large. It did at LB’s inquest and again this week at the ongoing GMC tribunal. Dr Murphy’s respective barristers both presented it as a transgressive space/action that somehow underpinned or fed into what unfolded. It was a malign catalyst for something (I’m not sure what either barrister was trying to argue other than the blog damaged the relationship between consultant psychiatrists and a patient’s mother).

How social media ‘feedback’ is ‘used’ by health and social care is the subject of considerable research, some of which is happening in our research group. A colleague has been interviewing people who document their health experiences online to explore why they do so.

When I started writing the blog back in May 2011 ‘online patient feedback’ was not a twinkle in my eye and possibly wasn’t even a thing. I wanted to capture the funny stuff that happened in…

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